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Alzheimers TipsRead these 21 Alzheimers Tips in 6 categories ranging from Caregivers and Coping to Life Modifications. Each tip is approved by our Editors and created by expert writers so great we call them Gurus. LifeTips is the place to go when you need to know about Alzheimers tips and hundreds of other topics. Become a Guru or Become an Advertiser. The Long Alzheimer's Good-ByeAlzheimer's has been called the "long goodbye," and "fading into the sunset." While these phrases definitely ring true, they do not necessarily reflect some of the practicalities that will emerge. Many other deaths are sudden, quick or dramatic enough that intervention and care is at the hospital or handled mostly by health care staff. Alzheimer's is not this way, we as caregivers have lots of time to prepare and muddle over the last days. As is typical, however, most Alzhiemer's resources only give brief mention to the topic of end-of-life. Certainly it's necessary to do what we can to maintain function and living, but it's to our detriment not to prepare for the eventuality. Here are some links that talk about the details of caring for end-of-life: including things like how to handle constipation, diarhhea, pain, etc. American Academy for Hospice Care http://www.aahpm.org/cgi-bin/ American Family Physicians Merck Manual for Health and Aging Alzheimer's The Need to Run AwayYou'll probably read about wandering and Alzheimer's. What I would like to talk about here, however, is you running away. One day, every day, or at some point you will feel like you want to run away from this situation. Alzheimer's isn't like a cold that gets better, a tumor that gets cut out, or even a migraine. It's constant, invisibile, and tenacious. It's natural to want to run from it all. When these feelings emerge, be selfish, enlist friends and family to give you a break. The burden isn't all supposed to fall just on you. It just feels that way. Do what you need to do to get a break, whether it's a few hours, a day, or a week -- do run away; so that you can come back. Northwester Offers Great Alzheimer's TipsSome of the most practical info I've ever read: http://www.brain.northwestern.edu/patients/care.html Structure the environment
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Celebrate the Parts that Still Work: Alzheimer's Bit By BitMy father used to be able to quote P/E ratios of stocks in his portfolio. Now he's more likely to blow up an egg in the microwave. Slowly he's lost many mental abilities, much like turning off circuit breakers one at a time; you can see each room growing dim as a circuit closes down. Then again, he'll still make the same jokes, tell the same stories and likes the same things as he did before. Try to expect less, enjoy the parts that still work. "Alz" proofing the house: An Alzheimer's HouseMost people are ready to "child-proof" their homes when babies start crawling and toddlers start poking around in every nook and cranny. "Alzhiemer's" proofing your home, however, can unexpected and be an even greater challenge. Depending on how Alzheimer's has affected the person in your home will affect what you need to alter, but be prepared to alter. For example, have they lost the ability to figure out the proper amount of time to heat something in the microwave, but still retain the urge to "use" the microwave? If the microwave is built into a cabinet, it's tougher to unplug it. Do they wander around and turn off all the lights out of habit, even if others want them on? Some switches might need to be "taped" over. Is the stove still accessible to them? Do they want to put the kettle onto the gas stove? It may mean that the kettle has to be hidden. One suggestion is to "groove" them into a path, a routine that let's them do what they want to do, but leaves other things safetly untouched outside of their path. For example, create a special nook or corner on the kitchen counter that has "their" stuff. Maybe a box of biscuits or snacks keeps them coming back to rummage there. This could keep them away from poking around in other cabinets. Do they have a favorite chair in the living room that's exclusively theirs. Keep some newspapers, magazines or knitting supplies there. This gives them a place to go to when bored, rather than wandering to other parts of the house. Periscope: The View From Within an Alzheimer's SubmarineImagine viewing the world thru a periscope, there's a limited view, and just one pipe that everything needs to get thru. In contrast, adults without Alzheimer's have learned to take in a "wide-view" of the things around us. For example, while driving we're constantly looking at the side-mirrors, back mirrors, watching our speed, the sidewalks for pedestrians and kids, etc. An Alzheimer's tank is much more methodical and brute force. It sees dinner and goes to eat dinner, there's no idle chit-chat to distract. Keep this in mind when trying to get someone with Alzheimer's to do something, just focus on conveying only the information necessary to get down that periscope. He'll be watching and waiting. |
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